MRF
Morgellons Research Foundation
PO Box 357
Guilderland, NY 12084-0357
August 2008 Newsletter
Topics:
1. Microbiologist's report
2. NIH Undiagnosed Diseases Program update
3. The Doctors show
To MRF Registrants:
Microbiologist's Report:
A microbiologist whose work was funded through a grant from the
MRF has issued a phase one report. The microbiologist was clear
that the information provided to the MRF in this report was
absolutely preliminary and not conclusive in any way. The
microbiologist has submitted a request to the MRF for an additional
two phases of this study which we hope to be able to fund in the
future. The microbiologist's name has been omitted at their request
since they do not wish to be contacted by patients and the media and
wish only to do their work. You can read this phase one report
here:
NIH Undiagnosed Diseases Program:
Unfortunately, according to an official at the NIH Undiagnosed Diseases
Program, a decision has been made at the NIH that patients with
Morgellons disease will not be accepted into this program. We
sincerely apologize for this situation, especially for those of you
whose physicians already submitted your information to this program.
The CDC continues to investigate Morgellons disease and will release
their findings when they are ready.
We would like to thank a patient with Morgellons disease for
her participation in a segment of THE DOCTORS, a new,
one-hour syndicated daytime talk show which will premiere in
September on CBS. . We will give you additional information
about the date this segment will air when the information
becomes available to us.
As always, we will update you as quickly as possible when any
new information becomes available to us.
Best wishes,
William T. Harvey, M.D.,
M.P.H., M.S., Chairman
Mary M. Leitao, Executive Director
Douglas Buckner, Ph.D., Associate Director
Janelle Fossen, Secretary
Dale Cowher, CPA, Treasurer
Roy Houchins
Board of Directors
Morgellons Research Foundation
The Morgellons Research Foundation is a 501(c)3 non-profit organization